I don't have much of an update for you... we've had a pretty rough week. Doug is still pretty swollen, but it has started to even out through the rest of his body which may be a good thing. The swelling has gone down a little bit, though mostly due to a new drainage tube that's in his chest now, draining out excess fluid that should'nt be there. That is a total of 7 tubes/IV's going into our little man. 2 tubes in his mouth, one for the ventilator, one for suction. An IV in his chest and right hand. A drainage tube in his belly and one in his chest, and he had to have his catheter put back in. The doctors still don't know what is causing the swelling or excess fluid, but there are a good number of great doctors putting their heads together trying to figure it out. I am confident we will get an answer soon, but the waiting is almost unbearable. Dougie is back on a lot of meds, and also back on nitric oxide... seeing more tanks, meds, and tubes come back into his room was very overwhelming, but it's the best thing for him at this point. All I can do is pray they find the answers needed to make our little man better. But until then, this is just another hurdle little man is having to overcome.
It's hard to imagine what life would be like if we weren't in this situation and Dougie had never been diagnosed with CDH. Would Brad and I be this close, would we appreciate life as much as we do now, would we be as thankful for every day? All I am sure about is this: God gave us the incredible privelege of being Dougie's parents, and because of that I am unbelievably grateful for every day I get to have with my little man; every minute with him is a precious gift & blessing.
With all that has happened this week I cannot imagine going through this without Brad, who may have to go back to work next week. We are a team and need each other now more than ever just to get from one day to the next and to be there for Douglas.
Please keep Dougie close in your hearts & prayers...
God bless our little man,
The Collins'
Your courage gives me such a huge spiritual lift! I love reading your blog. Please keep each other close and give your little boy lots and lots of love! I continue to pray for your family and your little boy everyday!!!
ReplyDeleteAm really greatful for the updates as well as your incredibly positive attitude. Hang in there, there are tons of people praying for Dougie. We have faith that the doctors will figure out what's going on. Hugs to all..
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